Showing posts with label Books about deaf people. Show all posts
Showing posts with label Books about deaf people. Show all posts

Sunday, September 30, 2007

Great Deaf Talent-- Regina Olson Hughes

So today I’m reading my book called Great Deaf Americans and once again I’m inspired by what so many were able to achieve. Their intelligence, creativity, bravery, and diligence were awesome. It’s so hard to pick just one person to highlight each week.

One point that struck me while reading other deaf blogs this past week however was the negativity surrounding oralism. Deaf people who use “hearing behaviors” or who speak occasionally instead of always communicating in ASL may be accused of not acting deaf by their peers—and this is NOT a compliment.. Read this blog. As someone who is late-deafened I almost always use my voice, though I’m learning ASL. I feel far removed from this oralism debate and can’t comment to the deaf perspective.

But as someone who is neither fully hearing or culturally deaf I will say this-- I do not believe all deaf people can learn to speak or lipread. It is wrong for the hearing to force such high expectations on the deaf. Over the years, the ability to speak among the deaf has wrongly been associated with intelligence level in some cases, which has hurt many highly intelligent deaf people. I want to be clear that the ability to speak and lipread is only related to one’s hearing ability and nothing more. Simply stated, some deaf people hear more than other deaf people. Some are born deaf, while others become deaf during childhood or later, after learning to speak. All of these factors taken into consideration can lead to greater advantages when learning to lipread and speak and also reading and writing abilities.

For example it is a known fact young children benefit from playing language games and being read to long before they begin reading themselves. Early language skills are the foundational building blocks of reading and writing skills. Children who are born deaf are not exposed to English language as young children. If a person becomes deaf after age five, naturally he or she will be at a greater advantage for learning to read, even though he or she did not learn to read before deafness because the language building blocks were put in place.

Then again, the deaf develop other language building blocks related to ASL. No one has ever studied this to my knowledge, but I wouldn’t be surprised to learn that IQ testing is skewed for the deaf simply because they think and process information differently. My guess is they are all much smarter than we know. Psychologists already understand IQ testing is not as much of a science as it is an art. We’re continually discovering new information about the brain—new ways of measuring intelligence and new types of intelligences. I suspect ASL expands intelligence in ways we have not measured yet. The deaf see our world differently and we would be wise to make the most of their gifts.

Instead we have tried to force them to be oral like square pegs into round holes. This has led to backlash among the deaf —a sort of reverse discrimination where everything “hearing” may be perceived as against deaf culture.

There was a simpler time long ago when deaf people could be oral or non-oral, and there was no rift in the deaf community. It didn’t matter. You simply did what you had to do to get ahead.

Regina Olson Hughes was one such person. She was born in 1895 and died in 1993. Always interested in drawing from the time she was a young child her parents had her tutored privately in art. At age ten she became sick with Scarlet Fever and began losing her hearing. (Another source said a doctor poured oil into her ears when she was a child.) It’s hard to know what caused her progressive hearing loss to start. She was deaf by the time she turned fourteen.

Then she went to Gallaudet for her Bachelor’s and a Masters in art. (Later, because of all her accomplishments she was given and honorary doctorate degree.) Incredibly she was able to speak four languages by lipreading: French, Spanish, Portuguese and Italian. Most the time she lipread if it wasn’t too important to understand, but if she needed to be sure of details she had people write the words out on paper.

Eventually she took on a job for the State Department as a translator. Then later she worked for the Department of Agriculture as a scientific illustrator. She also took on another job with the Smithsonian’s Department of Botany painting plants. Today her work can be found in plant manuals, on pesticide labels, and in dictionaries, as well as museums and cards.

Tuesday, August 28, 2007

Getting What You Want


Recently our local ALDA president asked me to write about my experience of trying to get accommodations for my son's high school graduation ceremony this past June. I thought I would include it in here as well. Many of us struggle through this process when we attend public events. In the same newsletter, another friend will be writing about how she tried to get accommodations when she was called for jury duty. Why is it the wheelchair ramps and braille on the doors and elevators are always in place, but the deaf have to make special requests?? Then we have to fight tooth and nail to get it. Here's my story--

I had been through the process of lining up accommodations for my kids' graduation ceremonies before. I knew I needed to start early. With that in mind I typed off my first email to one of the high school counselors in charge of the ceremonies named Sara in early April. Then I said a silent prayer that the other one, Dave, wouldn't be involved in arranging details for that portion of the night's events. I had dealt with him before.

When I didn't hear back for several weeks, I emailed again. If you have normal hearing you might be wondering why I didn't call. I do not hear very well. I might have used IP relay, but like every other business in America, the school has an automated answering system with a menu requiring a series of numbers to be systematically punched in before a human comes on the line. The relay operators can't punch the numbers for us, and by the time they tell us the selections on the menus, we make our choices, then tell the relay operators what numbers to punch in, the automatic machines automatically hang-up. It's a nightmare for deaf people-- but that's for another blog. Anyway, so I emailed the counselor a second time and received this prompt reply back.

(And yes!! These excerpts are from REAL emails I have saved on my computer, but the names have been changed.)

From Sara-

"Kim,
I forwarded your emails to Dave. You haven't heard from him?"


DRAT!! This is not good, I thought. Then I emailed Dave.

"Hi Dave,
I am deaf. I will need accommodations for the graduation ceremony on _____. I contacted Sara on _____, and she said she forwarded my requests to you. What I need is this:

http://www.ncdhh.ne.gov/brochures/cart_broch.pdf.
It's called Computer Assisted Real-Time Transcription, and basically requires hiring a transcriber, providing a screen and special equipment. The cost is normally about $125.000 and I can provide you with a list of transcribers in the Seattle area, but they need to be lined up soon. They provide their own equipment and screen. I am not fluent in ASL, as I'm late-deafened, so hiring an interpreter wouldn't be a good idea.


Please get back to me as soon as possible so we may make arrangements as I feel it's getting late."


From Dave--
Kim, I have been doing graduations for over 10 years for ___, andhave never been aware nor asked to look into either of these options. I have no idea who to turn to for this particular equipment.
I am not sure I will have the time to take care of this and I do not know who would take care of the costs. I am not aware of the person who provided you with (. . .the past accommodations) I will check with __________, ASB Activities Coordinator,on Monday . . .

DRAT--AND DOUBLE-DRAT!! I thought. He had done nothing!!! (ARGHHG!!) WHY did he wait so long? Why did he not find out who would pay at least? When was he going to tell me he wasn't planning to do anything? And WHY did he think the Associated Student Body should pay for my accommodations? What?! Were they supposed to hold a bake sale to pay for the CART and transcriber? Did the ASB have to pay for the wheelchair ramps too? Get real! I had to do some deep breathing and relaxation exercises before sending my next email.


My email to the principal--
Dear Ms. Principal,
My son will be graduating on June ___, and I am in need of accommodations for the ceremony as I am deaf. I emailed ______about this on _______ and haven't heard back. I will need preferential seating, and Computer Assisted Relay-Transcription(CART). I can provide you with a list of people who offer this service. . . . Please let me know what you plan to do to accommodate me for my son's graduation ceremony. If I don't hear back soon, within the week, I plan to contact the Office of Civil Rights to file a complaint against the school district.


Message from Ms Principal-
Hello Ms. _____I am now just reviewing my e-mails. I am sorry that Ms. ______ was not able to get back with you yet about your accommodation request. She is researching how to get what you have requested so she can have information when contacting you. . . . I also cc. Mr. ______. . . . Please know we are well aware of the right you have to have accommodations and the need to help you. That all being said, I personally want you to be able to enjoy this important moment for you son, _____. We will make sure your request is honored. . . Thanks for letting me know of your concern.


And I DID enjoy his graduation! We were seated as close to the stage as possible. I sat right next to the transcriber, who typed every word, even the announcements and the words to the songs were typed onto the screen too. It was fabulous!! The song lyrics were appropriate and moving. The student commencement speeches were sweet and funny and eloquent in the upbeat, informal, endearing way only eighteen-year-olds can be. I enjoyed it SO MUCH!! The school paid. Yahoo!


What I have learned is:
1) Start your requests early
2) Know what you want
3) Have information ready
4) Don't back down
5) Play hardball if you need to. You have nothing to lose. As my mother always said--"The squeaky wheel gets the oil."


I also want to point out my threat to file a complaint with the Office of Civil Rights was not a bluff. I have filed against the school district in the past, and would have done it again. I have a hunch Ms. Principal was well aware of this, even though it wasn't her school I filed against. Know your rights and do not make empty threats.

It is nice to follow up with a thank-you note afterwards, though not absolutely necessary since they are required by federal law to accommodate you, but it's still thoughtful and smooths things over after you've given them such a hard time making them jump through hoops and all. 8-)
By the way, none of the graduates pictured above are my son. Those are graduates of Florida State. I just thought it was a cute picture.

Monday, August 27, 2007

Good Deaf Reads


Last week while digging through a pile of old books I came across a great mystery I'd read long ago called A Maiden's Grave by Jeffrey Deaver. It was about two kidnappers who held a school bus full of young girls and their teachers hostage in an abandoned meat factory. The twist; the captives turned out to be deaf. What the kidnappers didn't count on was the trouble they would encounter controlling their victims due to the deaf girls' ability to speak silently to each other in ASL when their captors weren't looking. Oh this was a GREAT read! Another fun book I enjoyed a couple years ago was, If You Could Hear What I See, written by deaf comedian Kathy Buckley about her childhood. Then I remembered an informative biography I read about Thomas Gallaudet way back when I was a kid called Gallaudet, Friend of the deaf. This was an old, old biography written for children published in 1964, but was really quite good, though I'm not even sure it's available anymore. Occasionally I pick up a great "deaf" read. Flipping through the pages of some of my favorite books gave me the idea it might be fun to compile a list of good reads about deaf/hard-of-hearing people, their culture and history.

So I've done just that. I have only read the top two on this list, but I plan to read the rest. If you know of a good book or biography involving a deaf character or a great "deaf" non-fiction read, send me the title and author, and I'll add it to my list. I plan to place this list on the right side of my blog too, and separate the books by genre.

1. A Maiden's Grave by Jeffrey Deaver
2. If You Could Hear What I See by Kathy Buckley
3. Silence is Golden: A Connor Westphal Mystery by Penny Warner
4. Deafening by Frances Itani
5. The Story of My Life by Helen Keller
6. Through Deaf Eyes: A Photographic History Of An American Community
7. Everyone Here Spoke Sign Language: Hereditary Deafness On Martha's Vineyard by Nora Ellen Groce
8. In Silence: Growing Up Hearing In A Deaf World by Ruth Sidransky
9. The Tailor's Daughter by Janice Graham
10. Hurt Go Happy by Ginny Rorby
11. MindField by John F Egbert
12. Talk Talk by T. Coraghessan Boyle
13. Deaf Women's Lives: Three Self- Portraits
14. She Doesn't Look Deaf by Corinne Cheatham
15. Deaf In Delhi by Madan Vasishta

If you know of a book, send the title to me, and I'll add it!