Not long ago in a recent post (The Blame Game) I mentioned the need for Deaf support to help the late-deafened transition into deafness. My article focused mainly on the difficulties of learning ASL in a hearing environment, but there are a number of ways a Deaf person could support late-deafened people through the transition of learning to live with deafness.
Wendy beautifully described some new situations she's dealing with now that she can no longer hear at all. How do you use a TTY? Where is the best place to put a flashing fire alarm? How can it be hooked up to notify you all over the house?
Wendy beautifully described some new situations she's dealing with now that she can no longer hear at all. How do you use a TTY? Where is the best place to put a flashing fire alarm? How can it be hooked up to notify you all over the house?
It might sound odd to some of you, but growing up hearing I was never exposed to any of this Deaf stuff. I didn't know phones with text and blinking lamps, and shaking bed alarms existed. My entire family is hearing and all my friends used to be hearing. I was the first hard-of-hearing-going-deaf person I ever knew. When my hearing loss first began there was no internet, and there was no SHHH or ALDA in my area. My audiologist didn't think to tell me how to negotiate every day living, such as what to do if you can't hear your own fire alarm.
You would think an audiologist would offer some daily living support to a newly late-deafened person besides just hearing aids and/or cochlear implants, but in this regard audiologists are clueless. For example, at my last audiology appointment my audie pointed to my Sidekick and asked, "What's that?" She had never seen one before. When I explained what I could do with it, she was amazed. I too was amazed-- at her ignorance in this matter. Surely I wasn't the only patient she's ever had who couldn't use a cell phone? Audiology clinics focus on helping people hear, NOT on all the accommodations deaf people can use when they CAN'T hear. It's a void that needs to be filled, for sure, but who should fill it?
Everyone-- both hearing and deaf-- seem to think it's the OTHER group's responsibility to help us adjust. So by and large there's no support for the late-deafened, except other late-deafened people, who are mostly learning as they go.
Gosh-- it would be so great if a Deaf veteran took my hand and said-- "This is how to do it!" I'm still trying to figure out the Video Phone I got from Sprint months ago. The problem is it was linked to a computer that died and everything's been wonky since. I'm not sure what to do, so I haven't used it in months. I'd love to use it to practice ASL with a few people I know. To be perfectly honest I'm still totally confused about all the different phone options for deaf people and how they work. It's mind-boggling.
It wasn't until I found SHHH (now HLAA) I learned a few things-- about Harris Catalog, FM systems, my deaf rights and pocket talkers. I found them on my own twenty years after I started losing my hearing. Turned out there's a wonderful support center for the Deaf/deaf/Hard-of-hearing in Seattle, but I hadn't heard about them either. Through HLAA I found another group, the SWC, which is on-line. I can't tell you how important their support has been to me. But my point is, I merely stumbled onto both these organizations twenty years AFTER losing my hearing. No one was there to help me cope for twenty years.
Whose responsibility is it to support deaf/Deaf/HH people?? Other deaf/Deaf/HH people. We would be much more powerful and effective as a community working together. Maybe it's time to recognize none of us has the right answer for everyone. Maybe it would be better if we just reached out to those confused hearing parents of Deaf children and newly late-deafened people and said, "This is what works for ME, but there are other ways too."
We're all in this together.
