Showing posts with label accommodations for deaf. Show all posts
Showing posts with label accommodations for deaf. Show all posts

Friday, December 14, 2007

Sitting in the dark--- thinking




(Before I begin, I should probably inform you all I've changed my address. If you're a regular reader, it's now djembeslappin.blogspot.com)
When a friend emailed to ask if I wanted to meditate with an Indian guru I have to admit I was skeptical. The timing conflicted with my belly dancing class, but I've also had some reservations about group led meditations ever since my Lamaze classes years ago. Visions of a dark hot room with a mumbling facilitator whose lips I wouldn't be able to see in dim candlelight flashed through my mind.

Then by coincidence the storm we had last week flooded my dance instructor's apartment. She called from an emergency shelter to cancel all our classes and activities for the month. I felt badly for her, but this left a void in my Thursdays that needed to be filled. I've come to enjoy dancing each week. I love wearing a colorful coin skirt that sparkles in the light when my hips wiggle. More than that, I really NEED the female companionship.

I live in a "man house." With men. Who watch football from August through, um. . . when does it end??? ESPN is on three televisions in three rooms whenever they're home. Football season lasts for several months. Three men. One of them doesn't even live here. I'm not sure why the third TV needs to be on when he's not here, but it is-- ALWAYS! Their dinner discussion revolves around football each night, while I read a book. Sometimes they call the third one or a grandfather to chat them up about scores, while I'm virtually ignored. It's just me and the cat here taking up space. One computer must also be left on a certain sports website at all times, so they can check games that aren't televised. I have my own computer, so I won't bother their website. I must never, ever touch the MAN computer. THE website must be there at all times in case something important happens. I try to fill my nights as much as possible-- books, computer, djembe, belly-dance, ASL, work. . . (Picture above is of two of them during a Seahawks playoff game a couple years ago. They've had seasons tickets to football games since before they could talk.)

Given the choice between staying home on Thursdays or meditating in a group, the guru began to sound more appealing. I sent an email to him. "Can you accommodate me? I'm practically deaf, and I read lips." We'll see if that doesn't put him off, I thought. Almost no one willingly accommodates the deaf and this was being held in a home. It wasn't a business setting that HAD to accommodate me.

"YES-- Please come!" he wrote back.

Awww --- what the heck, I thought. If worse comes to worse, I'll close my eyes and take a nap. I enjoy my friend. We'll have a few laughs. She's always getting me into stuff like this.
So-- off we went last night. When we pulled up to his house, it appeared dark inside. I asked if she was sure he wasn't a serial killer. She wasn't too encouraging. "We'll find out!" she grinned.

Our first meditation was called a "Darkness Meditation" Whooooooooo. Sounded creepy.

We arrived early and were greeted warmly by a man with an abundance of curly gray facial hair. Reading his lips would pose a challenge. Oddly, this guy didn't look at all Indian. His eyes were bright blue. Stepping inside I picked up scents of cardamon, clove and saffron. Shoes were left at the door, then we were offered tea and honey. "Hi--I'm Kim. The one who emailed you about not being able to hear?" I reminded him.


"OH Yes!" he beamed, then grabbed my hands, "Come right in, you'll have no problem, I'll look right at you and you'll sit next to me. You'll be fine." He smiled softly and squeezed my palms ever so gently, warming them from the cool night air. Geez! He was giving off really good vibes!

I could hear the beat of New Age music playing quietly in the next room. It sounded like a djembe, the little African drum I play. We settled in to relax with our tea while others arrived.
"He doesn't look Indian" I said to my friend.

"No, I think he's Canadian." she replied.

Here's the run down of our first meditation with him. It was called a Darkness Meditation. First, he told us a little about the meditation. It was an ancient "Essene practice." I don't know what this means. Don't ask me. It's ancient. He went on to talk about how many other cultures have practiced this, including the Egyptians and Jews when Jesus was alive and so on. He described how one loses the feeling of oneness in darkness and becomes one with the universe and one with the darkness. Humans tend to fear darkness. The idea was to look into the darkness, and not be afraid. We were to welcome it. The darkness, he said, was like a womb, and we would become one with the darkness and with everything. He sat next to me and looked right at me while he spoke. I was able to lip read him because this part was all spoken in a well-lit environment. I might be wrong about this, but I think he might have trimmed his mustache and beard a little between the time I arrived and the time he started speaking.

Here's what he says about the meditation on his website. "In this meditation we use the absolute darkness of a lightproof room. The absence of light can be a primal source of relaxation and inner nourishment.
The Indian mystic Osho has said of this meditation: "In it, you can become like the ocean. You can be one with darkness. And darkness is so oceanic; nothing is so vast, nothing is so eternal."


He gave us the run down of what we were supposed to do before doing it, so that I wouldn't be lost in the dark-- literally. Next, we were led into a basement holding candles, then one by one we would blow them out until the room was completely black. Then we would meditate in total darkness with no sound with our eyes wide open for one hour. Why should your eyes stay open in darkness? Because when you close them, you see negative images of what you've been looking at earlier. You know how that is-- right? If you're looking at your computer screen right now, and you close your eyes, you'll see a rectangle of a computer screen. That's a negative image of what you just saw. So you must keep your eyes open to look into the darkness. Thus, you'll see only positive images in the darkness. Negative images are bad. Positive=good.

Admittedly it was weird looking at nothingness at first. The basement had been prepared so that it was indeed pitch black after all the candles were extinguished. An hour is a long, long time to sit and think with your eyes open in pitch black. My first thought was, "What the hell am I doing here sitting in the dark looking at nothing for an hour. I PAID for this? Sometimes I'm SUCH a sucker!!" But the longer I sat there thinking, the more peaceful I began to feel. As my thoughts started to settle, interesting things started happening. VERY interesting things. I was surprised! Amazingly the time FLEW by! It seemed like our session ended within a matter of minutes. Afterwards, I started to describe my experience to my friend and she finished my sentence. She had the very same experience. I came home feeling relaxed and energized. I'm SO glad I did it!! What a great tool for managing the stress of the holidays!

Next week, we're going to try Kundalini. I've always wanted a Kundalini experience! I hope I can manage it. I know it's not easy, but I think this guy is really GOOD!

Sunday, September 16, 2007

Deaf Hero Robert Weitbrecht

This past week my belly dancing instructor made the comment, "There's a fine line between erotic and exotic." In dancing, the difference is in how many inches apart you hold your feet while shimmying. Just a few inches can create a completely different look-- alluring and graceful or flaunting and brash.

The debate we've been having in here and on other blogs between "audism" and "deafism" got me thinking about the lines we draw between ourselves as deaf people. Medically speaking there's a fine line between a severe hearing loss and a profound hearing loss. There's a fine line between "hard-of-hearing" and "late-deafened" or "d-deaf." There's a fine line between oral deaf who were born without hearing and late-deafened who were born hearing, then lost most of their hearing. I know several oral "d-deaf" who hear better than me, who also sign better than me and speak well too. It seems to me they are the best off because they speak and sign so well. I envy them. I wish I were fluent in ASL, but I didn't grow up with a profound hearing loss. I am trying to learn.

Part of the reason I blog is to inform hearing people about deaf people. This is why I have Deaf Hero Day each week. Today's hero is deaf physicist, Robert H. Weitbrecht who invented the coupler for the TTY. Born deaf on April 11, 1920 in Orange, California, Weitbrecht was tutored in speechreading-- the prevailing method of deaf education at that time. He did not learn ASL until he was an adult. Because of his hard work, deaf people were able to communicate with each other by phone.


To read more about Weitbrecht, click on his name.

Tuesday, August 28, 2007

Getting What You Want


Recently our local ALDA president asked me to write about my experience of trying to get accommodations for my son's high school graduation ceremony this past June. I thought I would include it in here as well. Many of us struggle through this process when we attend public events. In the same newsletter, another friend will be writing about how she tried to get accommodations when she was called for jury duty. Why is it the wheelchair ramps and braille on the doors and elevators are always in place, but the deaf have to make special requests?? Then we have to fight tooth and nail to get it. Here's my story--

I had been through the process of lining up accommodations for my kids' graduation ceremonies before. I knew I needed to start early. With that in mind I typed off my first email to one of the high school counselors in charge of the ceremonies named Sara in early April. Then I said a silent prayer that the other one, Dave, wouldn't be involved in arranging details for that portion of the night's events. I had dealt with him before.

When I didn't hear back for several weeks, I emailed again. If you have normal hearing you might be wondering why I didn't call. I do not hear very well. I might have used IP relay, but like every other business in America, the school has an automated answering system with a menu requiring a series of numbers to be systematically punched in before a human comes on the line. The relay operators can't punch the numbers for us, and by the time they tell us the selections on the menus, we make our choices, then tell the relay operators what numbers to punch in, the automatic machines automatically hang-up. It's a nightmare for deaf people-- but that's for another blog. Anyway, so I emailed the counselor a second time and received this prompt reply back.

(And yes!! These excerpts are from REAL emails I have saved on my computer, but the names have been changed.)

From Sara-

"Kim,
I forwarded your emails to Dave. You haven't heard from him?"


DRAT!! This is not good, I thought. Then I emailed Dave.

"Hi Dave,
I am deaf. I will need accommodations for the graduation ceremony on _____. I contacted Sara on _____, and she said she forwarded my requests to you. What I need is this:

http://www.ncdhh.ne.gov/brochures/cart_broch.pdf.
It's called Computer Assisted Real-Time Transcription, and basically requires hiring a transcriber, providing a screen and special equipment. The cost is normally about $125.000 and I can provide you with a list of transcribers in the Seattle area, but they need to be lined up soon. They provide their own equipment and screen. I am not fluent in ASL, as I'm late-deafened, so hiring an interpreter wouldn't be a good idea.


Please get back to me as soon as possible so we may make arrangements as I feel it's getting late."


From Dave--
Kim, I have been doing graduations for over 10 years for ___, andhave never been aware nor asked to look into either of these options. I have no idea who to turn to for this particular equipment.
I am not sure I will have the time to take care of this and I do not know who would take care of the costs. I am not aware of the person who provided you with (. . .the past accommodations) I will check with __________, ASB Activities Coordinator,on Monday . . .

DRAT--AND DOUBLE-DRAT!! I thought. He had done nothing!!! (ARGHHG!!) WHY did he wait so long? Why did he not find out who would pay at least? When was he going to tell me he wasn't planning to do anything? And WHY did he think the Associated Student Body should pay for my accommodations? What?! Were they supposed to hold a bake sale to pay for the CART and transcriber? Did the ASB have to pay for the wheelchair ramps too? Get real! I had to do some deep breathing and relaxation exercises before sending my next email.


My email to the principal--
Dear Ms. Principal,
My son will be graduating on June ___, and I am in need of accommodations for the ceremony as I am deaf. I emailed ______about this on _______ and haven't heard back. I will need preferential seating, and Computer Assisted Relay-Transcription(CART). I can provide you with a list of people who offer this service. . . . Please let me know what you plan to do to accommodate me for my son's graduation ceremony. If I don't hear back soon, within the week, I plan to contact the Office of Civil Rights to file a complaint against the school district.


Message from Ms Principal-
Hello Ms. _____I am now just reviewing my e-mails. I am sorry that Ms. ______ was not able to get back with you yet about your accommodation request. She is researching how to get what you have requested so she can have information when contacting you. . . . I also cc. Mr. ______. . . . Please know we are well aware of the right you have to have accommodations and the need to help you. That all being said, I personally want you to be able to enjoy this important moment for you son, _____. We will make sure your request is honored. . . Thanks for letting me know of your concern.


And I DID enjoy his graduation! We were seated as close to the stage as possible. I sat right next to the transcriber, who typed every word, even the announcements and the words to the songs were typed onto the screen too. It was fabulous!! The song lyrics were appropriate and moving. The student commencement speeches were sweet and funny and eloquent in the upbeat, informal, endearing way only eighteen-year-olds can be. I enjoyed it SO MUCH!! The school paid. Yahoo!


What I have learned is:
1) Start your requests early
2) Know what you want
3) Have information ready
4) Don't back down
5) Play hardball if you need to. You have nothing to lose. As my mother always said--"The squeaky wheel gets the oil."


I also want to point out my threat to file a complaint with the Office of Civil Rights was not a bluff. I have filed against the school district in the past, and would have done it again. I have a hunch Ms. Principal was well aware of this, even though it wasn't her school I filed against. Know your rights and do not make empty threats.

It is nice to follow up with a thank-you note afterwards, though not absolutely necessary since they are required by federal law to accommodate you, but it's still thoughtful and smooths things over after you've given them such a hard time making them jump through hoops and all. 8-)
By the way, none of the graduates pictured above are my son. Those are graduates of Florida State. I just thought it was a cute picture.